Patient Journey
Scroll through this page to learn about all of the steps and details that you may go through as a colorectal surgery patient. Refer back to this page as you go through your own patient journey to answer any questions or concerns you may have about the procedure as a whole.

Diagnosis and Testing
Receiving the News and How to Prepare for Treatment.
(Radiology Tests, Blood Tests, Endoscopy, Other Consultations)
Patient education is a key to making informed decisions from the day you receive your diagnosis. Receiving a cancer diagnosis is one of the most stressful events you might experience; learning to navigate what it means for you and your loved ones is important. We hope this website will provide a comprehensive overview of all the steps involved in your treatment so that you can get the best possible care every step of the way.
This guide will start with the tests you will undergo after receiving your diagnosis and end with your recovery should you undergo surgery.
During diagnosis, your healthcare team will work with you to confirm the cancer. Not everyone follows the same process. For example, some people may be referred by their family doctor or have suspicious findings on imaging. Others may be referred to our Team via the UHN CRC Carepath.
Diagnosis normally involves an endoscopy (camera-guided scope) and biopsy. Biopsies help to confirm a tissue diagnosis for cancer. Additionally, it can help to further characterize your cancer and reveal unique characteristics that allow us to tailor our treatment. We also normally do blood tests that check your iron levels, blood count, and for the presence of specific tumour markers.
Depending on the type of cancer we are concerned about, you may be asked undergo imaging, such as CT scans and MRIs. Your healthcare team will talk to you about the specific tests required for your situation. It is also common to have bloodwork drawn to check your blood count, iron levels, as well as look for specific cancer-related tumour markers.
For gastric cancer, sometimes a laparoscopy is recommended by your Surgeon. This is a minimally invasive procedure done in the Operating Room to examine the organs in the abdomen and pelvis. It involves making small incisions (cuts) through which a telescope is inserted so that your Surgeon can look at your organs on the inside. This is helpful to guide recommended treatment for cancer.
For rectal cancer, it is common for your Surgeon to examine you with a flexible sigmoidoscopy. A sigmoidoscopy helps to evaluate the rectum and lower part of the large intestine. During a flexible sigmoidoscopy exam, a thin, flexible tube (sigmoidoscope) is inserted into the rectum. A small video camera at the tip of the tube allows the doctor to view the inside. Patients normally do not need any pain medication or sedation for this exam and it is usually complete in only a few minutes. It may be slightly uncomfortable, but should not be painful. If necessary, tissue samples (biopsies) can be taken through the scope during a flexible sigmoidoscopy exam.
With every diagnosis, many steps are taken before you consider surgery. This includes confirming and staging your cancer to identify the type of procedure that best suits you. To do this, these are some of the tests you may be asked to undergo. In this situation, additional investigations to determine your overall current health may also be ordered.
What tests am I likely to need before discussing the management of my colorectal cancer?
Radiology Tests

PET/CT – Clinical Image
CT or CAT scan: In computer tomography (CT), many X-ray images of body tissues are taken. A computer will combine these images to produce a three-dimensional, detailed image that allows the doctors to examine your tissues for cancer while also showing if your cancer has spread to other parts of your body. CT scans of the chest, abdomen and pelvis are typically done.
MRI: To investigate the location of certain colorectal cancers in more detail than a CT is capable of, you may undergo an MRI as well. An MRI (magnetic resonance imaging) uses magnetism and radio waves to create cross sectional pictures of the body and is the ideal form of imaging for soft tissues. It produces pictures from all angles around the body and does not expose you to any radiation. These scans can help provide clearer pictures of organs to help interpret the results of your CT scan.
Blood Tests
- Blood Count: A complete blood count (CBC) measures the number of red cells, white cells and platelets in your blood. A CBC can be helpful for identifying issues such as anemia or any potential for bleeding complications; these can then be managed before undergoing surgery.
- Liver: Liver function tests (LFTs) check how well your liver is working. In combination with other tests, they may also help point to any possible spread of cancer to the liver.
- Kidneys: Urea and electrolytes check how well your kidneys are working.
- Biomarkers: Tumor markers which are substances (usually proteins) that might be raised if there is a cancer. They can be found in the blood, urine or body tissues. This includes a test for the markers such as carcinoembryonic antigen (CEA), which can help determine the benefit of surgery as well as monitor your response to treatment and surgery. It is one of the most widely used biomarkers in the world. After treatment, a return to a normal CEA level that was previously high usually means that the cancer has responded to treatment. A CEA level that rises after treatment has ended usually means that the cancer has come back.
Other Consultations (Medical and Radiation Oncology)
- In addition to your surgeon, you may be referred to other medical specialists that will help determine if other treatment options beyond your surgery may be suitable for you. These specialists will help in determining whether chemotherapy and radiation will be necessary in treating your specific type of colorectal cancer. You will receive a call from their office regarding the time and location of the appointment as well as any additional testing that may be necessary.
Psychosocial Services
- At the Psychosocial Oncology Clinic, your team includes social workers, music and art therapists, psychologists and psychiatrists. They provide counselling and therapies to help you and your family cope with cancer, reduce stress and improve emotional well-being. We offer many services to help you and your family while you are a patient at Princess Margaret Cancer Centre. We also provide support after your treatment.
For many cancer cases, we participate in a Multidisciplinary Review where a team of specialists (Medical Oncologists, Radiation Oncologists, Surgeons, and Radiologists) meet to determine the best treatment plan as well as the recommended order of treatment. For many cancers, we use multi-model treatment, which can include a combination of surgery, chemotherapy, immunotherapy, and radiation.

Meeting the Surgical Team
Discussions with your Healthcare Team.
For your initial consultation with your surgical team, you will have an appointment with your surgeon at our clinic at the Princess Margaret Hospital (PMH) Cancer Centre or at Toronto General Hospital (TGH). They will review your test results as well as discuss the different treatment options that may be beneficial to you. Typically, you would meet your surgeon within 7-10 days of referral for a consultation.
Our Clinical Nurse Specialist or Administrative Assistant will contact you within 48 hours of receiving the referral to conduct a telephone assessment, discuss next steps, and arrange for expedited testing, listed above. You may undergo a short endoscopic procedure at this appointment (flexible sigmoidoscopy). Our team will discuss with you the details of how to prepare for this procedure, if necessary
Meeting your surgeon one-on-one allows you to learn more about your diagnosis while getting the answers to any questions you have at this point. Your surgeon will review all the investigations and discuss the type of surgery they anticipate you will need based on your cancer and your overall health. This will depend on many factors like the location and size of the cancer, whether or not the cancer has spread outside of the colon, and where it has spread, if it has.
To learn more about the specific surgeries you may undergo, please refer to the Surgical Techniques section. Further details will also be provided by your surgical team.
For your initial consultation with your surgical team, you will have an appointment with your surgeon at our clinic at the Princess Margaret Hospital (PMH) Cancer Centre or at Toronto General Hospital (TGH). They will review your test results as well as discuss the different treatment options that may be beneficial to you. Typically, you would meet your surgeon within 7-10 days of referral for a consultation.
Our Clinical Nurse Specialist or Administrative Assistant will contact you within 48 hours of receiving the referral to conduct a telephone assessment, discuss next steps, and arrange for expedited testing, listed above. You may undergo a short endoscopic procedure at this appointment (flexible sigmoidoscopy). Our team will discuss with you the details of how to prepare for this procedure, if necessary.
Your surgery will be scheduled after all of the important steps in preparation have been completed. It is our priority to schedule your procedure as soon as possible. We will also ask for you to be seen in our pre-admission clinic by our nursing and anesthesia teams. It is important to understand that this will often occur within 4 weeks of consultation. Scheduling your surgery will depend on your current physical fitness to undergo an operation, the need for further testing to optimize surgical planning and operating room availability. Research has suggested it is safe to wait for 4-6 weeks for your procedure.
Rectal cancer patients will often need to be treated with chemotherapy and radiation therapy before surgery. Prior to proceeding with surgery, your surgical team will repeat the MRI and endoscopy to reassess how the tumour has responded to treatment. Additionally, it is quite common for patients to have their operation performed 8-12 weeks after completing chemotherapy or radiation. The timing will be further explained by your surgical team.

Preparing for Surgery
What can I do to optimize my outcomes?
(Nutrition, Exercise, Smoking Cessation, Stress Reduction, Other Specialties)
Recovering from surgery requires your body to work significantly more than it normally would, as it heals. To do so, ensuring a proper diet that maximizes high protein intake, especially in the two weeks preceding surgery has been found to reduce the length of recovery afterwards. This can be done by using high-protein supplements in addition to having nutritionally balanced meals during the period leading up to your surgery. You should aim to add 20-25g of protein to your diet every day; a dietician may help you tailor your meals so that your total intake of necessary nutrients is ideal.
There is evidence to show that better fitness levels improve outcomes after surgery. With regular exercise, your body is able to cope better with the stresses put on it as a result of surgery. Even if you have low activity levels, you can improve your fitness in as little as four weeks by attempting regular exercise.
Your pre-admission team can discuss with you the level of exercise that would be safe for you. Regular physical activity provides an opportunity for you to get fitter before your operation and improve your chances of a quicker post-surgical recovery since your body will be better suited to deliver oxygen to healing tissues.
A good goal is to try and achieve at least 10,000 steps per day if you’re able. Most smartphones allow you to track your steps!
Smoking can significantly hinder your healing after surgery. By stopping smoking before your procedure, you will improve wound healing while reducing the risk of surgical site infections. Your anesthesiologist will also highlight the value of smoking cessation prior to surgery, particularly if you are managing any respiratory conditions. Ideally, smoking should be stopped 6 weeks before your surgery if possible.
If you cannot quit smoking, try and reduce your smoking to the best of your ability. You benefit from nicotine replacement – talk to your Surgeon or Pharmacist about this
Cutting back on the amount of alochol you drink before and after surgery is a good idea. Alcohol use is associated with a higher risk of post-operative/post-surgery complications. Short-term abstinence from alcohol use (2 to 4 weeks) prior to surgery is linked to a lower likelihood of postoperative complications.
Similarly, avoiding alcohol for 5-6 weeks after surgery is also wise. This can reduce your risk of experiencing complications like delayed wound healing, infection, and impaired heart function. Additionally, many people use opioids (strong pain killlers) after surgery and combining these with alcohol is dangerous and not recommended.
Reducing stress prior to your surgery can impact the length of your recovery as well as your perception of pain during this time. In addition to being well informed about your surgery using this website or by meeting with your healthcare team at your pre-admission consult, you can also practice relaxation techniques such as music or massage therapy to reduce stress levels that may stem from anxiety about your diagnosis and treatment. If you find that you are having difficulty managing any stress you may be experiencing, or that your mood has been lower than usual, please discuss this with your surgical care team as well as your family doctor. There may be additional options to help you cope in preparation for your surgery.
To optimize your recovery from surgery, patients can undergo a process known as prehabilitation, where you can modify your nutrition, exercise and stress levels in order to strengthen your body for your procedure.
Undergoing surgery can alter how you manage your other conditions temporarily. You should schedule to meet each of the specialists you’re followed by, prior to your procedure in order to discuss how this may affect your other treatment plans. For example, your diabetic specialist will help you alter dosing of your diabetes medications in the period before and after your surgery.

One Week before the Operation
Meet with the Anesthesia and Surgical Team
Before surgery, you will have an appointment with the Preadmission Department where you will meet with an Anesthesiologist and a Nursing team. They will discuss several steps that should be taken prior to your surgery. This may be done over the phone and your current medical history as well as other important information such as your current medications will be collected and reviewed. They will give you directions on how to adjust your medications before surgery, if this is needed.
During this visit, we may also ask you to have some routine tests like an ECG, Chest x ray and blood work to ensure you are fit for surgery.
For patients with complex health conditions, you may also be seen by an Internal Medicine specialist or Endocrinologist.
During this visit you will meet with an anesthesiologist and nursing team. They will discuss several steps that should be taken prior to your surgery. This may be done over the phone and your current medical history as well as other important information such as your current medications will be collected and reviewed.
Questions your anesthesiologist will ask you:
- If you have had any previous operations and anesthetic experiences?
- If you have had any previous operations and anesthetic experiences?
- If any serious complications of anesthesia were experienced by you or your family members (for example, a reaction known as malignant hyperthermia)?
- If you have any allergies or drug sensitivities?
- If you have any chronic medical conditions. If yes, how are they managed and are they currently stable?
- What medications you are taking, including prescription and over the counter medications, as well as any supplements?
Questions you can ask your surgical team:
- What happens during your surgery.
- What kind of help you may need as you recover from surgery.
- When to stop eating or drinking before surgery.
- How to manage your pain and other symptoms.
- Exercises and activities you must do after your surgery and after you leave the hospital.
- How to plan for your recovery after surgery.
- If your surgery might lead to creating a stoma. An enterostomal therapist will be present to discuss what this would entail and how you can manage it in your day-to-day life.
- When to stop eating or drinking before surgery.
- Which of your medications to take or not take prior to surgery. You may need to stop taking some medicines to reduce the risk of severe bleeding (specifically, blood thinners).
- Your options for anesthesia (general anesthetic, regional anesthesia, sedation or combinations of these.)
- The risks of anesthesia in your case given the type of surgery and any other medical conditions you may have (ie. heart, lung, liver, kidneys, thyroid, etc.)
- What options for managing pain after your surgery can be offered (ie. patient controlled analgesia (IV pain pumps), an epidural or a nerve block.
Talk to your family or friends about how long we expect you to stay in hospital so that they are ready to help you when you are discharged home. You may need help with things like meal preparation, grocery shopping, childcare, and transportation to appointments. You may want to stock up the freezer with easy to prepare meals in case you are tired after surgery. For most of our surgeries, we ask that you avoid heavy lifting over 10 lbs (5kg) for the first month after surgery to reduce the risk of a hernia after surgery. Because of this, you may need to ask others for help moving heavy objects.
This week, you may also need to make changes to the medications you are taking before surgery. This will be discussed with you during your Preadmission visit with the Anesthesia team.

One Day before the Operation
Bowel Cleanse and Dietary Changes
(Steps to follow the day before your Operation)
In some cases, you may be asked to do a bowel cleanse before surgery similar to a colonoscopy preparation. Detailed directions will be shared with you by the Surgeon’s assistant. It’s important to follow these directions closely to ensure your bowels are clean for surgery. This will help to reduce your risk of infection after surgery.
If you are unsure if you need a bowel prep before, or do not understand the directions, please contact the assistant of your surgeon. We would be happy to answer any questions you have about this important step.
Tips to Make Bowel Prep Easier
Follow the advice you were given during your Preadmission appointment about changes to your diet as well as when you need to stop drinking.
You may need to make changes to the medications you are taking before surgery. This will be discussed with you during your Preadmission visit with the Anesthesia team
To reduce your risk of infection, you will bathe or shower the night before and the morning of surgery. This helps to reduce the number of bacteria on your skin, which is a common source of infection after surgery. You can find more information in this brochure.
You may also want to watch this video on how to prevent pneumonia (chest infection) after surgery. Developing a chest infection can happen after bowel or stomach surgery, and there are simple things that you can do to reduce your risk.

Day of the Operation
Information for the Day of your Surgery
( Pre-Operative Care Unit, Undergoing and Waking up after Surgery)
- Double check the location of your operation – it could be at either Toronto General Hospital or Toronto Western Hospital.
- Aim to arrive 2-3 hours before the planned start time of your operation.
- You can drink clear fluids up until you arrive in the hospital.
Once you arrive, please go to the Pre-Operative Care Unit (POCU)
You will be checked in by the Ward Clerk and your Nurse double checks your name, date of birth and chart information. They will also make sure that you have a wristband that has your name. If you have allergies or you are at risk of falling while in hospital, we will give you separate allergy or falls risk armband. These will be checked before you go for your surgery.
You change into a hospital gown and you will be placed in either a recliner or on a stretcher (depending on your surgery). The Nurse will place a warming blanket on you to help keep you warm before and during your surgery. This helps lower the chance of infection. You will also be given a disposable hair cap in which you should place all your hair until your surgery is over.
Shortly before your procedure, your Anesthesiologist will meet you to review your medical history and to perform a short pre-operative assessment. This will be similar to the one performed at your pre-admission consult and will act to confirm that the anesthetic plan they created for you is optimized based on your most-up-date health status. An intravenous (IV) may be started in your arm and, you may be given medication to help you relax.
Afterwards, members of your Surgeon and other members of your surgical team will meet you to review your health. At this point, your Surgeon will confirm with you the area on your body where the surgery will happen. They will use a special marker to mark the area. We won’t take you to the operating room until the site is marked. Please don’t mark your body yourself before your surgery.
When it is time, a member of your healthcare team will take you to your OR. When you arrive, members of the surgical team, your Anesthesiologists and OR Nurses will be present to welcome you. Once inside, you will be asked to lay on your back on the OR table and several sensors will be attached. These sensors are used to monitor your vitals (heart rate, blood pressure, oxygen levels, etc.) during your operation.
Before your surgery begins, we will review all of the important information about you out loud. This is called a time out. This makes sure that the operating room team understands and agrees with what they will do. At this point we also confirm the procedure and the site of your surgery. Next, your anesthesia team will give you medications that will put you to sleep through your intravenous (IV) line. They will also give you antibiotics to protect against infection. Some of these medications may create a light burning sensation that will wear off in seconds; you should fall asleep immediately after this point. In many cases, your Anesthetist will choose to have you under general anesthesia, in which case they will insert a breathing tube that will be used to protect your airway and control your breathing; this is called intubation.
Your surgical team will then prepare you for the operation. They will put pads and cushions under your bony areas (elbows, ankles). This prevents any pain and discomfort during your surgery.
If needed, some of your body hair will be removed just before the sites of your incisions are sterilized. Please do not shave or clip your body hair in the area of your surgery at home as this can increase your chance of getting an infection. To sterilize your skin, a reddish purple solution will be applied to your skin and left to dry. You may notice skin discoloration where it was applied after your procedure.
In many cases, your surgical team will insert a foley catheter due to the length of your surgery. This is a catheter that is placed along the full length of your urinary tract in order to drain any urine accumulating in your bladder during your procedure. Best practice requires that the catheter be removed in the first 24 hours after your procedure. An exception is made for some rectal surgeries; the catheter is removed within 48 hours instead. Although not common, once your surgery is done, drains may be left inside your abdomen to help prevent accumulation of fluids during your recovery.
To learn more about the specific surgeries you may undergo, please refer to the Surgical Techniques section.
Once your surgery is over and you are awake, you will be transferred to the recovery room in PACU. There you will be monitored and cared for by a team of Nurses that will either organize your transfer to an inpatient ward or prepare you for your discharge home. Your surgical care team will have organized for you to receive medications for any pain, nausea or vomiting that you might experience afterwards. You will also receive fluids through your IV line until we determine that it is safe for you to start drinking clear fluids again.
Common symptoms you may experience after surgery include:
- Nausea and vomiting from general anesthesia.
- Sore throat (caused by intubation)
- Soreness, pain, and swelling around your incision sites.
- Thirst
Because of some of the medications used by your anesthetist during your surgery, you may experience grogginess during the first day after your procedure. As you recover, a member of our surgical team will contact your family or loved ones to let them know how your surgery went.
What happens next?
If you are alert enough, we will speak to you briefly in the recovery room right after your surgery. However, as it may take some time for anesthetic medications to wear off, we will most likely visit you in the evening following your surgery. By then and if you are being admitted as an inpatient, you will also have been transferred to an inpatient bed and have many of your postoperative symptoms being actively managed.
Minimizing your pain is one of our priorities. We aim to reduce post-surgical pain by using a multi-modal approach to treating it. This generally means that we will use multiple types of pain medications such as Tylenol®, Advil® and opioids to reduce your pain. Although opioids can be more potent analgesics, we try to reduce the doses given to you as they can be associated with side effects such as nausea, vomiting and constipation.
In some cases, we may set you up to control your own pain management using “patient-controlled analgesia,” or IV pumps that let you administer pain medications yourself whenever you feel that your pain level is too high. Your surgeon will discuss whether this is an appropriate option for you.

Post-Operative Hospital Stay
What happens after Surgery?
(Information about hospital stay, recovery and remote care)
Nurses and other healthcare team members will regularly:
- Check your vital signs (temperature, pulse, breathing, blood pressure)
- Look at your incision(s), tubes and drains
- Ask you how you are feeling
- Assess your pain and how well it is controlled
- Assess bowel sounds to see when you can start drinking and eating
- Draw and check your blood work
- Help you get up and move safely
- Will partner with your family to help with your care & involve them in teaching
- Keep you updated on the plan of care and when you should plan to go home
For some patients, (for example, patient who have had gastric surgery or had an ostomy created), a Registered Dietician will talk to you about your diet, how to manage side effects, and when you can start eating regular foods again.
For some patients with new ostomies, you will also see a Clinical Nurse Specialist with expert training in Wound, Ostomies, and Continence Care. They will teach you how to care and manage your new stoma.
Your Surgeon and the Surgical team will follow your progress every day while you are in hospital. Our surgical residents and Fellows often visit early in the morning. Please ask questions if you don’t understand the plan of care or how you are progressing after surgery.
You may also encounter other allied health professionals, such as Physiotherapists or Social Workers.
Most patients stay in hospital for about 2 to 5 days before going home.
Most people are ready to go home when:
- their pain is manageable on oral medications (pills),
- when they are eating and drinking,
- when they are able to move around and support themselves safely
We do NOT normally wait for you to pass gas or have a bowel movement while in hospital, but many patients often do so anyways. We will also ensure you know how to care for any new drain, tubes, or devices needed after surgery as well as arrange for any care you need in the community (ie. Home care services). We also want to ensure that you feel prepared to go home and understand how to care for your body while at home.
The healthcare team will give you a letter to take home called the Discharge Summary. This letter is for you and your family doctor. It includes important information about the details of your surgery and hospital stay. It also includes important follow up instructions.
Please arrange for someone to pick you up from the hospital to take you home.
You may have some pain and discomfort after surgery. You will get better faster if your pain is well controlled. We will do all we can to keep you comfortable. Pain medicine takes time to work so take your pain medicine before your pain becomes bad.
Your team may ask you to take less strong painkillers like Tylenol (Acetaminophen) as you recover. Studies show that taking Tylenol as prescribed can help to lower the number of narcotic pills (strong pain medicine) you will need to take. They also have less side effects. Your doctor will give you a prescription for pain medicine before you go home. Follow the instructions for how often you should take it.
IMPORTANT: Do NOT drink alcohol or drive while taking narcotics (strong pain medicine) because they can make you too sleepy. It is not safe.
You may have an upset stomach (nausea) after surgery. This can be common after having an anesthetic, or just from having stomach or bowel surgery itself. Your nurse can give you a medication to relieve nausea if you need it.
In the few days after surgery, you may have gas pain. Walking is the best way to relieve this type of pain.
You may also feel weak, have a low appetite, or may have diarrhea after surgery. Your healthcare team will help you manage this as you recover.
You can access your health record online through a secure website for UHN patients called myUHN Patient Portal.
For more information or to get your registration code, contact myUHN Support at 416 340 3777 or email myUHN (myUHN@uhn.ca).
Learn more about myUHN at https://www.uhn.ca/PatientsFamilies/myUHN.